Rare Genomics Institute Brings Hope To Rare Disease Patients
Electronic Health Reporter
MAY 9, 2019
This article is copyrighted strictly for Electronic Health Reporter. Illegal copying is prohibited. By Romina Ortiz, COO and vice president of patient advocacy, Rare Genomics Institute. Getting a diagnosis for a rare disease is a long and often painful journey that can take an average of five years1 and hundreds of doctor visits. Sometimes, the answer never comes; conventional diagnostics does not always provide a diagnosis for diseases […].
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