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Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit

Healthcare IT Today

Kind of on a whim I decided to head to San Diego (a great place for whimsical travel) for the RARE Patient Advocacy Summit by Global Genes. One other cool thing was that many of those in attendance had literally written the book on rare disease. Ok, Barby has like 9 books: [link]. HITsm pic.twitter.com/EqdQvPhisf.

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Creating A Thriving Patient-Centric Data Economy

HIT Consultant

Patient data will be a sustainable resource that continually generates patient-benefitting research insights. Patient advocacy and non-profit health organizations will be the “credit unions” — responsible fiduciaries who connect patients, researchers, hospitals and other institutions.

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What’s Causing Fewer Primary Care Visits in the US?

Health Populi

Primary care provides patient advocacy in the health care system to accomplish cost-effective care by coordination of health care services. Primary care promotes effective communication with patients and encourages the role of the patient as a partner in health care. This is one of the pillars for U.S.

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Weekly Roundup – September 17, 2022

Healthcare IT Today

Andy Oram talked to Imprivata CEO Gus Malezis about the role of patient data harmonization and AI-powered analytics in helping Amazon capitalize on its One Medical buy – and why it will take at least five years for Amazon to put it all together. Read more… Giving Patients With Rare Diseases Support – and a Voice.

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Weekly Roundup – September 17, 2022

Healthcare IT Today

Andy Oram talked to Imprivata CEO Gus Malezis about the role of patient data harmonization and AI-powered analytics in helping Amazon capitalize on its One Medical buy – and why it will take at least five years for Amazon to put it all together. Read more… Giving Patients With Rare Diseases Support – and a Voice.

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Another Legislative Attempt to Revive Gene Patenting

Bill of Health

One hundred sixty civil rights, medical, scientific, patient advocacy, and women’s health organizations opposed the Coons-Tillis bill, arguing that if it were enacted, “Patients will again be at risk of lacking access to information about their genes, about their very selves. Myriad and Gene Patenting.

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Can a Food-As-Medicine App Extend Chronic Health Management at the Grocery Store?

Jane Sarashon

Sidebar: Dr. Lustig’s book, Metabolical, is must-reading if you are keen to better understand the interrelationship between nutrition, metabolism, inflammation, and immunity). The philosophy underneath Foogal is that “Our health is in our hands,” and the best medicine we have is food.