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Q&A: George Church on Genomics of Cognitive Enhancement

Bill of Health

In 2004 this was chip synthesis of pathogen DNA. How does your lab handle ethical issues that might arise? I routinely accompany each potentially transformative paper with a paper addressing the ethics (safety, security, equity, or stigmatization). In 2005 the topic was consent for public release of human data. In 2014 CRISPR gene drives.

FDA 240
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A Matter of Trust, Perception, Risk, and Uncertainty – The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions

Health Populi

Fear about an Ever-Changing Context : When PLM first formed back in 2004, a lot of the data sharing issues we speak about hadn’t even been conceived of yet. Imagine if, in 2004, you shared data with PLM (or any organization) with an expectation that it would always be shared in a de-identified way. Probably not so great.